Communication and Decision Making in Neonatal Intensive Care: Why Narrative Medicine Matters.
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Data
2020
Título da revista
ISSN da revista
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Editora
Ludomedia
Resumo
Objective: This paper aims to analyse parents’ and health professionals’ discourse,
regarding four main areas: (1) the experience of care; (2) communication among all
stakeholders; (3) ethical issues; (4) and ethical decision-making. Methodology: The authors
collected 62 narratives from health professionals and parents whose newborns have been
hospitalized for at least 15 days in the neonatal intensive care unit (NICU). We carried out a
qualitative content analysis with the support of NVivo software version 12 Pro. Results: The
feelings/emotions are present in a high percentage of narratives (mostly negative ones).
Parents´ learning emphasizes coping strategies. Most narratives focus on communicational
aspects. Decision-making is referred to in almost half of the narratives. The ethical issues and
questions mentioned are mainly related to decision-making. Conclusion: The present study
emphasizes narrative relevance in the alignment of parents´ and health professionals´
perspectives to promote therapeutic relationships.
Descrição
Through this study, the researchers aimed to answer the question: what do parents’ and
healthcare professionals’ narratives tell about communication and decision making in the
NICU? There was a special focus on ethical issues and intervenients’ perceptions,
feelings and emotions. This purpose is supported on the assumption that the analysis of
such discourse, with special attention to the use of metaphors and images, is an
important tool to identify barriers to a trustful and empowering relationship between
health professionals and parents at the NICU.
Palavras-chave
MEDICINA, COMUNICAÇÃO, TOMADA DE DECISÃO, CUIDADOS INTENSIVOS NEONATAIS, CUIDADOS INTENSIVOS, MEDICINE, COMMUNICATION, DECISION MAKING, NEONATAL INTENSIVE CARE, INTENSIVE CARE
Citação
Carvalho, C., Vale, A., & Magalhães S. (2020). Communication and Decision Making in Neonatal Intensive Care: Why Narrative Medicine Matters. New Trends in Qualitative Research, 1, 104–121