Contributos para o estudo da participação em crianças com incapacidade, por comparação aos seus pares sem incapacidade, nos contextos de casa, da escola e da comunidade : visão dos pais
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Data
2014
Autores
Martins, Susana Isabel da Costa Oliveira
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Resumo
A presente investigação inscreve-se na linha de estudos que têm por base o
conceito de participação, enquanto expressão vital da condição humana e como
essencial para o desenvolvimento global, físico e emocional, mais especificamente, a
participação de crianças com incapacidade.
Assim, com esta investigação pretendemos, estudar a perceção dos pais acerca
da participação dos seus filhos, nos contextos de casa, da escola e da comunidade de
forma a contribuir com um conjunto de resultados que possam iluminar o processo de
inclusão. Para tal, e através de revisão de literatura identificamos um instrumento,
Participation and Environement Measure for Children and Youth (PEM-CY), que foi
traduzido e culturalmente adaptado para o contexto português.
Participaram neste estudo 390 pais, com crianças e jovens entre os 5-17 anos de
idade, dos quais 152 apresentavam algum tipo de incapacidade. A partir dos dados
recolhidos procedemos por um lado ao estudo psicométrico do instrumento que revelou
validade e fidelidade adequadas para o estudo da participação, por outro ao estudo da
participação nos diferentes contextos. Assim, e no que se refere à participação, verificase
que em Portugal, os resultados seguem a mesma tendência que nos países onde já
foram realizados estudos desta natureza, com as crianças com incapacidade a
apresentarem menor diversidade, menor frequência e menor envolvimento do que os
seus pares sem incapacidade nos três contextos estudados.
The present investigation it’s related to the research field on the concept of participation, which is a vital expression of the human condition and essential to global, physical and emotional development, specifically the participation of children with disabilities. With this research we intended to study parent’s perspective in what concerns their children’s participation in home, school and community settings, and by doing it, contributing with a set of results able to enlighten the inclusion process. Trough literature review we have identified an instrument, Participation and Environment Measure for Children and Youth (PEM-CY) which was translated and culturally adapted to Portuguese. Three hundred and ninety parents of children and youth aged 5 to 17, being 152 children reported as having some kind of disability, have participated in this study. From the data collected we proceeded to psychometric studies of the translated version, which pointed the Portuguese version to have adequate validity and reliability in the study of participation. In what concern participation, data collected showed that Portuguese results follow the same tendencies as other countries, where studies of this nature haven been made, that is, children with disabilities present less diversity, less frequency and less involvement than their peers without disabilities.
The present investigation it’s related to the research field on the concept of participation, which is a vital expression of the human condition and essential to global, physical and emotional development, specifically the participation of children with disabilities. With this research we intended to study parent’s perspective in what concerns their children’s participation in home, school and community settings, and by doing it, contributing with a set of results able to enlighten the inclusion process. Trough literature review we have identified an instrument, Participation and Environment Measure for Children and Youth (PEM-CY) which was translated and culturally adapted to Portuguese. Three hundred and ninety parents of children and youth aged 5 to 17, being 152 children reported as having some kind of disability, have participated in this study. From the data collected we proceeded to psychometric studies of the translated version, which pointed the Portuguese version to have adequate validity and reliability in the study of participation. In what concern participation, data collected showed that Portuguese results follow the same tendencies as other countries, where studies of this nature haven been made, that is, children with disabilities present less diversity, less frequency and less involvement than their peers without disabilities.
Descrição
Orientação: Manuela Sanches Ferreira ; co-orientação: Alcina Manuela Oliveira Martins
Palavras-chave
DOUTORAMENTO EM EDUCAÇÃO, EDUCAÇÃO, CRIANÇAS, JOVENS, PEM-CY, CRIANÇAS DEFICIENTES, JOVENS DEFICIENTES, PAIS, INSTRUMENTOS DE AVALIAÇÃO, EDUCATION, CHILDREN, YOUNG PEOPLE, DISABLED CHILDREN, YOUNG PEOPLE WITH DISABILITIES, PARENTS, PEM-CY, ASSESSMENT TOOLS