Contributo das variáveis familiares na qualidade de vida das crianças/adolescentes com diabetes tipo 1 : um estudo exploratório
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2022
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A diabetes mellitus tipo 1 (DM1) é uma condição crónica de saúde diagnosticada com mais
frequência em idades precoces. Ao receber esse diagnóstico tanto a criança como a família são
confrontadas com diversos eventos stressantes a que têm de se adaptar. A literatura tem vindo
a notar a importância das características familiares como promotoras na adaptação às condições
crónicas de saúde pediátricas (CCSP). Este estudo teve como objetivos a caracterização
descritiva da qualidade vida relacionada com a saúde (QdVRS) de crianças/adolescentes com
DM1, dificuldades na gestão da vida familiar e o significado dos rituais familiares; examinar
diferenças ao nível das variáveis de interesse em função dos grupos etários e sexo; análise das
associações entre as variáveis em estudo; e análise do contributo dos rituais familiares enquanto
moderador na associação entre as dificuldades na gestão da vida familiar e a QdVRS de
crianças/adolescentes com DM1. A amostra foi constituída por 22 famílias (pais/mães e
filho/filha com DM1) e foi recolhida através do método de conveniência nas consultas externas
dos serviços de pediatria do Hospital Garcia de Orta, EPE. Este estudo apresentou um desenho
metodológico quantitativo, de natureza exploratória transversal. Os resultados mostraram que
não existem diferenças significativas nas variáveis de interesse em função dos grupos etários
(crianças vs. Adolescentes) e sexo das crianças/adolescentes (rapazes vs. Raparigas).
Verificou-se a existência do papel moderador do significado dos rituais familiares na relação
entre as dificuldades na gestão da vida familiar de crianças/adolescentes com DM1 e a QdVRS
de crianças/adolescentes com DM1. O presente estudo mostrou dados relevantes que podem
contribuir para intervenções clínicas com as famílias que convivem com esta realidade que é a
DM1 pediátrica uma vez que as variáveis familiares podem desempenhar um papel
fundamental na adaptação da criança/adolescente à DM1.
Type 1 diabetes mellitus (T1D) is a chronic health condition most often diagnosed at an early age. Upon receiving the diagnosis both the child and the family are confronted with several stressful events to which they must adapt. The literature has noted the importance of family characteristics as promoters of adaptation to pediatric chronic health conditions (CCSP). This study aimed to descriptively characterize the health-related quality of life (HRQoL) of children/adolescents with T1DM, difficulties in managing family life and the meaning of family rituals; to examine differences in the variables of interest according to age groups and gender; to analyze the associations between the variables under study; and to analyze the contribution of family rituals as a moderator in the relationship between difficulties in managing family life and the HRQoL of children/adolescents with DM1. The sample consisted of 22 families (fathers/mothers and son/daughter with DM1) and was collected through the convenience method in the outpatient consultations of the pediatric services of the Hospital Garcia de Orta, EPE. This study presented a quantitative methodological design, of exploratory cross-sectional nature. The results showed that there were no significant associations in the variables of interest in terms of the age groups (children vs. adolescents) and the child/adolescent gender (boys vs. girls). The existence of the moderating role of the significance of family rituals in the relationship between difficulties in managing family life of children/adolescents with DM1 and HRQL of children/adolescents with DM1 was verified. The present study showed relevant data that can contribute to clinical interventions with families living with this reality that is pediatric DM1 since family variables can play a key role in the adaptation of the child/adolescents to DM1.
Type 1 diabetes mellitus (T1D) is a chronic health condition most often diagnosed at an early age. Upon receiving the diagnosis both the child and the family are confronted with several stressful events to which they must adapt. The literature has noted the importance of family characteristics as promoters of adaptation to pediatric chronic health conditions (CCSP). This study aimed to descriptively characterize the health-related quality of life (HRQoL) of children/adolescents with T1DM, difficulties in managing family life and the meaning of family rituals; to examine differences in the variables of interest according to age groups and gender; to analyze the associations between the variables under study; and to analyze the contribution of family rituals as a moderator in the relationship between difficulties in managing family life and the HRQoL of children/adolescents with DM1. The sample consisted of 22 families (fathers/mothers and son/daughter with DM1) and was collected through the convenience method in the outpatient consultations of the pediatric services of the Hospital Garcia de Orta, EPE. This study presented a quantitative methodological design, of exploratory cross-sectional nature. The results showed that there were no significant associations in the variables of interest in terms of the age groups (children vs. adolescents) and the child/adolescent gender (boys vs. girls). The existence of the moderating role of the significance of family rituals in the relationship between difficulties in managing family life of children/adolescents with DM1 and HRQL of children/adolescents with DM1 was verified. The present study showed relevant data that can contribute to clinical interventions with families living with this reality that is pediatric DM1 since family variables can play a key role in the adaptation of the child/adolescents to DM1.
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Orientação: Teresa Mendes
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MESTRADO EM PSICOLOGIA CLÍNICA E DA SAÚDE, PSICOLOGIA, DIABETES TIPO 1, QUALIDADE DE VIDA, SAÚDE, FAMÍLIA, ADOLESCENTES, CRIANÇAS, PSYCHOLOGY, TYPE 1 DIABETES, QUALITY OF LIFE, HEALTH, FAMILY, ADOLESCENTS, CHILDREN